you mention kids coming up and asking questions. Are they phased by having to talk through your aide? do they continue to talk to YOU, even though your aided is explaining?
I found your blog through your guest post there. I really enjoyed your post and it was really educational for me. I am not disabled and I am concerned about treating others how they would like to be treated- thanks for your post, it really helped me =) I'm definitely going to subscribe to your blog- keep writing!
I appreciate your point of view and don't mind giving people a brief answer, but I'm getting to the point that I don't want to talk about disability much beyond that--mainly because I have a whole host of diagnoses and people want to know about "cure," if I'll get better (who knows?; I don't want to dwell on the possibility things could get worse), etc. I'd rather people briefly ask than wonder, but I think I can cut it short without hurting feelings (kind of mumbling it or rushing through my answer signals that). I've also found out that by sharing, I become an object of gossip and people know very personal details about me that they shouldn't--that had been shared in confidence, not as public commodity to make them popular and seem "in the know."I do, however, want to talk disability--the social/political/accessibility aspects that affect my life greatly--and many other people's.But yes--people will compliment my accessories now (purse, scooter basket), but very few me or what I'm wearing. If they do, it's a comment on how I look better or worse in terms of health, not the attention I've given to hair or jewelry or a pretty sweater or cool shoes (although most are old!--I don't wear them out).
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