And today I had another encounter when I had my aide run into Starbucks for me to pick up my drink. I usually stay in the car since it takes a while to get in and out and I only want to get the tea and go. As I am waiting for my aide, I see the people in the next car looking at me and looking worried. They are talking but I can't hear them. But I know that they are saying- "Oh my god, kid in a hot car." For the record it was 75 degrees out and not hot in the car. When my aide came back, the woman called her over and said, "You know, it's really dangerous to leave a little kid in the car like that." My aide replied, "Oh, she's not a kid, she's 27 and she wants to be there." The two people looked immediately pretty embarrassed.Happy Monday!
Hehe :) Love it. Keep those cards and letters coming Eva, I enjoy them greatly!
ReplyDeleteWhile it can be annoying for those street performers to assume you want a pic w/ them, it does work in our favor when it's a celeb! I can't count the many times when I've a celeb willing to take a pic w/ me, while turning down the requests from able-bodied. lol
ReplyDeleteWouldn't you give the second couple a pass? People do leave kids in cars, and if they couldn't see your wheelchair or anything relating to your disability they would just take your appearance at face value and assume that you're younger than you actually are. In their minds someone had left a child in a car and they were standing up for a defenceless kid. While in this case it wasn't necessary, they weren't to know that.
ReplyDelete(I know it's easy for me to be more generous in assigning people's motives because I don't have to put up with this kind of assumption every day.)
"She's 27 and she wants to be there."
ReplyDeleteStory of your life, huh? Man, some people are so effing clueless. Those people don't get a pass.
So, anonymous, I assume you would rather a passerby not say anything, for fear of giving offense, than allow an individual who appeared to be unable to get out to remain in a car?
ReplyDeleteHi Eva,
ReplyDeleteJust found your site. It's great! I would like to introduce myself---I am Clint and I sustained a Spinal Cord Injury almost six years ago (hope you will go to my new blog for the "exciting" details). Glad to have made a new friend.
So glad you didn't "fry" in your 75 degree car!! HA!
Hi Eva! I came across your blog yesterday and I'm really enjoying it. I have one question for you (or anyone else who might read this) regarding the 'talk to me, not to my aide' issue. I have a disability which involves auditory processing difficulties; I have trouble hearing/understanding speech, and looking at the speaker helps a bit because I can watch their lips for clues to fill in the blanks. If I look at and address you when I talk, but I look over at your aide when they voice your response, am I going to seem just as rude as someone who looks at your aide the whole time? Would it be necessary and/or helpful to explain my situation? I don't want to do anything that may come off as offensive or annoying, but at the same time, I want to to understand your side of the conversation to the best of my ability. I'd love to hear from anyone who uses an aide and might have an opinion on this subject. Thanks in advance!
ReplyDeleteAli, I also have auditory processing issues. I would probably do the same thing - face Eva when I am talking and face the aide when she is talking. And my ADHD would have me glancing at the commotion off to the side as well as attempting to read the letter board.
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